Learn more about the data that informs AHEAD.
There are 6 core EHE indicators reported on this site. Five of the 6 core EHE indicators are from the National HIV Surveillance System (NHSS), managed by the Centers for Disease Control and Prevention (CDC). NHSS is the primary source for monitoring HIV trends in the United States. The CDC funds and assists state and local health departments to collect the data. States and local jurisdictions, including the District of Columbia and Puerto Rico, have laws or regulations that require confidential reporting by name for adults and adolescents (i.e., persons aged 13 and older) with a confirmed HIV diagnosis. After the removal of personally identifiable information, data from these reports are submitted to CDC. Health departments report these de-identified data to CDC so that information from around the country can be analyzed to determine who is being affected, which can inform where HIV prevention and treatment resources are most needed. The PrEP coverage indicator uses 4 different data sources. Please see PrEP coverage section for more details.
Data on HIV diagnoses should be interpreted with caution. Data may not be representative of all persons living with HIV because not all infected persons have been tested. Also, many states offer anonymous testing; the results of anonymous tests are not reported to the confidential name-based HIV registries of state and local health departments. The data presented on this site provide the minimum number of persons for whom HIV infection has been diagnosed and reported to NHSS. In addition, because surveillance practices differ, the reporting and updating of a person’s clinical and vital status differ among states. Data reported to the NHSS are considered preliminary until a 12-month reporting delay has been reached.
The NHSS data displayed on this site may not be comparable to surveillance data published by individual jurisdictions. This is because: (1) CDC de-duplicates cases at the national level, and (2) national data have been statistically adjusted to account for missing transmission category. For more information, please refer to the CDC fact sheet at the following link: Terms, Definitions, and Calculations | Surveillance Overview | Statistics Center | HIV/AIDS | CDC.
The baseline year for HIV surveillance data used for calculating the Ending the HIV Epidemic (EHE) indicators (incidence, diagnoses, knowledge of status, linkage to care, viral suppression, and PrEP) is 2017.
Data for the year 2020 should be interpreted with caution due to the impact of the COVID-19 pandemic on access to HIV testing, care-related services, and HIV case surveillance activities in state/local jurisdictions. Inclusion of 2020 data in trend assessments is discouraged. The reduction in HIV diagnoses in 2020 is likely due to disruptions in clinical care services, patient hesitancy in accessing clinical services, and shortages in HIV testing reagents/materials during the COVID-19 pandemic. Estimates of new HIV infections (HIV incidence) and knowledge of HIV status are not available for the year 2020 due to the impact of the COVID-19 pandemic on HIV testing. More time and data are needed to accurately assess COVID-19’s impact on HIV transmission in the United States.
Data for years 2021 and 2022 are considered preliminary and based on data reported to CDC’s National HIV Surveillance System as of March 2022. Diagnoses data are preliminary through March 2022. Linkage to HIV Medical Care and PrEP Coverage are preliminary through December 2021. Data reported to the NHSS are considered preliminary until a 12-month reporting delay has been reached.
Definitions for each indicator can be found at the following pages: